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Myelodysplastic Syndrome Discussions

Latest Posts to Myelodysplastic Syndrome Discussions

Hi, I'm Donald D P.
I have been on Jakafi since April 2016 so far with h very good results fo my mylofybrosis.. Very expensive.. My copay is $535 a month..
12
  • Sun Oct 30, 2016 · Like1
Anyone going to this event on Sat and Sun? http://www.hearthlightevent.com/
1
  • Thu Oct 27, 2016 ·
I'm KristenJ, and I'm a survivor of Other Cancer
Thank you for the information on palliative care. Prayers for all...
6
  • Sun Oct 23, 2016 · Like1
Water tastes bitter, so far coconut water (O.N.E., Zico) tastes least bitter for me. Dill pickles helped me a lot.
7
  • Tue Oct 18, 2016 · Like1
Hi, I'm Anne J B.
I was diagnosed with stage 2 Jan 1 2016. Had chemo and radiation, but decided not to have surgery. Surgery only improves survival by 10 % and I decided that I'd rather have quality of life. So f...
7
  • Sat Oct 15, 2016 · Like2
Hi, I'm Raymond G.
Finished 4 rounds of chemo 6weeks ago. Am now schedule for radiation 33 treatments with one low dose chemo treatment once a week during radiation.does anyone have experience with this. If so please...
1
  • Fri Oct 14, 2016 ·
Hi, I'm Hank D.
The book has also been done as a special on PBS.
4
  • Sun Oct 9, 2016 · Like2
Hi, I'm ROBIN P.
If anyone has Autoimmune Encephalopathy or knows someone with this disease, I would very much like for you to reach out to me please.
1
  • Sat Oct 8, 2016 ·
I'm Maria, and I support someone with cancer
Kristina, I think that cervical cancer is not one of those cancers where you should delay having surgery. Time is of the essence. Please do the surgery asap.
7
  • Mon Oct 3, 2016 ·
Hi, I'm Jerry W C.
I'm cancer free since Jul 2014. I still have joint pain and peripheral neuropathy, plus I have no energy. I live with it but would love to have a cure. My oncologist is a people person and runs ...
33
  • Fri Sep 23, 2016 · Like3

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