Breast Caner Index test
If any of you are on the fence regarding stopping and going more than 5 years on an AI talk with your team. I have just ended 5 years of Letrozole and for the most part have had few side effects. When I saw my Oncology ARNP a few weeks ago she recommended a Breast Cancer Index test. They use a piece of the tumor and send it to a special lab for special tests. It will show if one would benefit from an additional 5 years on the medication or it won’t really help. I came in right around 5% for recurrence and so I wouldn’t benefit from another 5 years. It is costly but I was told they work it out with your insurance company, I’m on Medicare so they will accept whatever Medicare allows and no more. It is a relief to know I can now discontinue 2 pills; my AI and a generic med. for my Osteopenia (which I had prior to my BC diagnosis). Be your own advocate and if unsure talk with your team as they have to order it.
Is it normal to do the index test after the 5 yrs of treatment? Or what prompted your doc to do it? I asked my PA if they did a mammoprint test or something similar – I read about it and she side no not with my type of b.c. (stage 1 and 0 ER/PR & Her2 positive no nodes) – I usually go blank when I’m at the doc so didn’t ask why? :( I’m going into my 5th mo of letrozole and my hips hurt terrible. I walk and workout but doesn’t seem to be helping. I can’t seem to lose weight either. and some weeks – OMG I’m so tired I don’t want to get out of bed and get wait to get back in it. then like last week – I had weird energy and I cleaned out all my cabinets and organized like I haven’t done since my diagnosis (August 2017). so my energy is up one week and down others and depressed and crying like crazy. I never know from week to week / day to day. I get my post treatment scans Oct 15. I’m nervous and so scared. I just want things to balance out some – I’m doing therapy and working out and trying to eat right – I’ve really cut back on sugar almost never have sweets anymore. that’s all I could eat during chemo so I got a lil addicted and now I try to replace it with fruit. I feel like I’m doing things right. I sure would like to know (or I think I’d like to know) my future risks. right now I’m completely obsessed with recurrence almost to the point I can’t move forward. sorry…I may have gotten off on some tangents. I was interested in that / any of those tests for recurrence. I plan to go in with a list of questions on the Oct 18th – and I pray the scans are normal but til then….stress stress stress!! best to all :)
I was diagnosed in Jan. 2013 and completed all my treatments at the end of Aug. 2013. I had done an OncoType DX test to see if I needed chemo. This test I mentioned was done in Aug. 2018 to see if I needed to continue, after 5 years of Letrozole or be taken off of it. So it’s a test to see if one would benefit from an additional 5 years on an AI or not. I have a couple of friends diagnosed in the last year who will be on an AI for 10 years rather than the 5 they used to do.