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Recommendation Colon Cancer Alliance Buddy Program

Updated Oct 1, 2010, filed in All Journey Phases, Colon Cancer, Rectal Cancer
About: Buddies have experienced what you’re going through. They are colorectal cancer survivors, caregivers, family and friends.
Buddies are there to listen, offer support, and share their experience. The buddy system does not substitute for diagnosis, treatment or information from a medical care provider. Once you are assigned a Buddy through the CCA Buddy Program, it is up to you and your buddy to determine the frequency and the best method for contact.
Location: national
Organization: Colon Cancer Alliance
Phone: 877-422-2030
email: info@ccalliance.org
type: supportive services
tags: emotional support
Hi, I'm Roger A T.

Buddies? i like that. i have colon cancer stage 4. 3 small spots on liver. taking 2 months chemo then another scan to see where we are? hopefully spots look better. then can do surgery on colon. so far i have been doing good. no sickness, still eat good, etc.
just praying for goos results.
roger

  • Mon Dec 24, 2012
I'm Maureen, and I'm living with Colon Cancer

Hi Roger – hope you are still doing well. I had stage 3 colon cancer, almost a stage 4. It’s pretty frightening isn’t it. I had no symptoms ! My surgeon did an immediate colonoscopy and removed the tumor. I then had 6 months chemo, 1 infusion every 3 weeks followed by pills to take for 2 weeks in between. After that my scan was clear – I am now 2 years in remission. I would encourage anyone with our problem to have the surgery – I really feel it saved my life. Hope your liver spots clear up so that they can get you into surgery. All the very best, Maureen

  • Sat Dec 29, 2012
I'm nazmiyebahar, and I support someone with cancer

Hello,

My dad got diagnosed with colon cancer stage IV. I was devastated when I found out on the phone and we are trying to get him treated ASAP. One problem that I noticed is that the 3 doctors we have been to have all said different treatment options. Does taking Avastin improve your chances?

  • Thu Apr 17, 2014
Hi, I'm Pete

Hi
I was told I had colon cancer stage 4 but at the time they thought it was only stage 3.
Had surgery 3yrs ago with radio & chemo following for 6mths. Got the all clear but 8mths ago we found it back in my lungs.
Now on Avasitin and Exolota tables which seem to be keeping the tumours from growing.
So nazmiyebah in answer to your question yes Avastin is currently one on the best treatments in improving your dads chances of a longer remission time.
All the best
Peter.

  • Sat Apr 19, 2014
Hi, I'm Nancy S.

Hello my name is Nancy but everyone calls me Drew. I was diagnosed with stage 4 colon cancer is September 2014.I had surgery but they couldn’t get all of it, it spread to my spleen.I was on chemo for over two years now I started with Keytruda.I was one of the lucky ones no real side effects. I was down for a few days after tx plus I went home with a pump.I continued my life without working, exercising, walking and eating healthy which I always did.Sugar was the hardest to give up because I like sweets but I found yogurt with 7 grams of sugar and drink smoothies with protein powder.So far this new tx is wonderful I pray that it is working. I don’t have much support actually Im the caregiver to my mom who is 89 and my husband but thats okay it gives me something to do.
My prayers are with y’all

  • Thu Mar 23, 2017
Hi, I'm Jennifer T G.

Hi my name is Jennifer. I’m 46 and the mother of 2 young boys, 9 and 12. I was diagnosed with stage 2 colorectal cancer in January. I started treatment right away and had radiation and a chemo pump Monday-Friday for 6 weeks. Tx was easy for me. I had the pump attached to me and I’d received my radiation and then go to work everyday. So I still worked, took my boys to their sport and school events and didn’t have many side affects except for pain! I don’t know if any of you have experienced pain but my doctors seem stumped as to what is causing the pain and that concerns me. About 3 weeks into tx I started to get horrible cramping and we just assumed it was the tumor shrinking. It was so bad that I couldn’t stand up or walk. It finally lessened in intensity but came back with a vengeance once tx stopped. The doctors said I’d feel bad about 2-3 weeks after tx ended because the last week of radiation was so intense. I’m feeling discouraged because I am still experiencing pain and tomorrow will mark 7 weeks post tx. The pain is about a 5 on the scale but periods of 10+ will come out of no where. I am constantly tired and haven’t been able to go back to work and have missed some of my sons’ games. I’m set to have surgery at the end of May to get the tumor out and am supposed to go back on chemo for 4 months after that. I’m getting discouraged and frustrated that I don’t feel like myself anymore. I’m reaching out to see if anyone has experienced anything similar. I’m hoping and praying that once I have surgery the pain will go away but I’m getting discouraged in the meantime and I just want to feel like my old self and do what I used to do. I get sad when I feel so crappy that I can’t make it to one of my son’s games or too tired to do things with my family. I guess I just need some reassurance from someone who’s gone through this that I’ll be back to my old self eventually. I don’t express my worries to my husband or family members because they are so worried about me and I want them to know I’m being strong but sometimes I feel so alone. I keep telling myself that this is temporary and I’ll be healthy and feel “normal” someday. I just wanted to reach out to other people that maybe could relate to me and ask for your input and/or advice. I don’t want to feel alone in this and I have plenty of family and friends who have been amazing but I wanted to communicate with other people that understand first hand. I know I wrote a lot, I guess I’m a little nervous doing this for the first time. I wish you all successful and speedy recoveries. And I would welcome any responses. Thank you

  • Sun Apr 30, 2017
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