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This is a public, open group for anyone to join, add events, upload documents and recommendations that are useful for Leukemia patients.

This is a wiki style group which will only become more useful as more people share and participate. Please join and participate!


  • Public, Open Access
  • All Journey Phases; Leukemia
  • Leukemia Group

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Hi, I'm Joyce L K.
I was diagnosed 4 years ago. My anemia is starting. They said it is not CLL. Most people with CLL become anemic from what I read.
  • Mon Sep 6, 2021 · Like1
I'm Sue pain, and I'm a survivor of Leukemia
Hi there,I’m 3 years into my cml journey.I’m just about to start another TKI Nilotanib and I’m really feeling anxious because this is my 4th treatment,as iv either not responded or have had a sever...
  • Sun Aug 8, 2021 ·


This is my first post. I was diagnosed by routine blood work at my first medicare physical 2.5 yrs ago- stage 1 CLL (watch & wait). (Having given blood for many years & just the month before!) I...
  • Sat Jun 26, 2021 · Like2
I'm James Essex, and I'm a survivor of Leukemia
Hello, This is my first time on the site. I?'m told this is a rare diagnosis. Are there any others who share it here
  • Fri May 21, 2021 ·
Hi, I'm PJ
My memoir (MY TRAVELS with the BIG C and a CLINICAL TRIAL that CHANGED my LIFE), an in-depth look at a clinical trial from a patient's point of view can now be purchased on Amazon in both book and ...
  • Mon Nov 1, 2021 · Like1
Hi, I'm Janet
I'm interested in connecting with other CMML patients. Diagnosed in March 2017 with CMML-0. Currently on watch and wait.
  • Mon Jul 3, 2017 · Like3
Uploaded Aug 15, 2011
The Leukemia and Lymphoma Society published a presentation by Carolyn Blasdel, RN,MA, OCN regarding side effects CML patients experience treated with commonly used drugs.
Updated Oct 21, 2010
About: The Leukemia & Lymphoma Society (LLS) is the world's largest voluntary health organization dedicated to funding blood cancer research, education and patient services. Location: national Or... more
Updated Jan 19, 2011
About: Established in 1997, The Max Foundation is dedicated to improving the lives of people with blood cancer and rare cancers. The International Patient Helpline is their flagship program. Locat... more
Updated Jan 20, 2011
About: The iCMLf is a Foundation established by a group of hematologists with a strong interest in CML. 
Our mission is to improve the outcomes for patients with CML globally. The Virtual Education... more
Updated Jan 20, 2011
About: The CML Advocates Network is a virtual network specifically for Chronic Myeloid Leukemia (CML) patient group organisers. It is an informal online organisation designed, published and moderat... more