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About this group

This is a public, open group for anyone to join, add events, upload documents and recommendations that are useful for Multiple Myeloma patients.

This is a wiki style group which will only become more useful as more people share and participate. Please join and participate!

Information

  • Public, Open Access
  • All Journey Phases; Multiple Myeloma
  • Multiple Myeloma Group
  • www.navigatingcancer.com

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Hi, I'm Samuel N.
Hi , I am Samuel N. and I've had MGUS for years, then smoldering multiple myeloma and just last August 19, 2019 I began treatment for the multiple myeloma. I have severe spinal stenosis and wonde...
1
  • Sat Feb 1, 2020 ·
Hi, I'm David P B.
I had a spinal fusion just before I was diagnosed with MM. I had bad pain for about 18 months, but it finally went away. The fusion somewhat limits my mobility (the back surgeon said this would ha...
5
  • Sat Feb 15, 2020 ·
Hi, I'm Bess W
Anyone having side effects from Velcade or Revlimid? Experiencing dry mouth and no taste, mild numbness on the tongue.
1
  • Wed Nov 13, 2019 · Like1
Hi, I'm David P B.
Phyllis, I'm pretty sure you have to be in remission before a stem cell transplant is considered. Ask your Oncologist. Ask lots of questions! Crafts, hobbies and working in the yard are great -...
5
  • Sat Feb 16, 2019 · Like1
Hi, I'm Bruce R Z.
I am looking for others diagnosed with Multiple Myeloma and also with CIDP (Chronic Inflammatory Demyelinating Polyneuropathy, an Autoimmune disorder). I was diagnosed with Multiple Myeloma in S...
1
  • Mon Dec 10, 2018 ·
Hi, I'm Steve E. J.
I would go with Northwestern Medicine in Chicago. They took good care of me and in remission almost 3 years. They have a whole floor 36 beds isolated for MM patients. I did tandem stem cell transpl...
10
  • Sat Dec 14, 2019 · Like3
Acrobat
Uploaded Feb 22, 2013
Caring for someone with multiple myeloma can be a challenge. Caregivers need to know what to expect, but they also have to care for themselves so they’re better prepared to support their loved one... more
Recommendation
Updated Oct 5, 2010
This program matches newly diagnosed multiple myeloma patients with trained cancer survivors of the same diagnosis. The survivors meet with patients and answer questions, instill hope and relate to... more
Recommendation
Updated Aug 12, 2009
A PDF of national guidelines in the USA
Recommendation
Updated Aug 12, 2009
Susie is a MM caregiver in the UK who has an inspirational blog of poetry chronicling her husband's journey with Multiple Myeloma.
Recommendation
Updated Aug 12, 2009
A wonderful explanation of the Free Light Chains that are monitored in Multiple Myeloma.