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I have been living with primary myelofibrosis for 13 years. To date I do not need medication although I do occasionally treat symptoms such as bone pain. It is imperative that someone with this disease see an MPN (myeloproliferative neoplasm) expert. Regular hematologist/oncologist usually do not know enough about this rare disease. Being treated incorrectly may lead to death. Some with this di…
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This information is not intended to replace the advice of a doctor. Navigating Care disclaims any liability for the decisions you make based on this information. This information was sourced and adapted from the National Cancer Institute's web site, www.cancer.gov.